Optimising malignant melanoma management in Europe
EUMelaReg collects health information to improve care and treatment for patients with skin cancer
Sustaining and fostering collaboration between academia and industry
for the collection of baseline, treatment and outcome data of representative samples of malignant melanoma patients of major European countries.
Building the largest and quickest melanoma registry in the world
EUMelaReg collects real-world data on melanoma patients throughout Europe and integrates them in a data warehouse.

Consortium

The consortium has been founded with the scope of assembling real world data on treatment and outcomes of patients with melanoma and, prospectively, other types of advanced skin cancer on a European level.

The major goal is the creation and maintenance of a central registry on melanoma and defined subtypes of non-melanoma skin cancer by:

  • Coordinating the generation of a comprehensive registry of clinical diagnostic, treatment, and outcome data from melanoma cases across different European countries.
  • Ensuring high quality by defining enhanced data set structures and value sets for clinical registration in order to maintain:
    • Comprehensiveness, such that a majority of incident cases can be covered
    • High quality and levels of granularity for clinical data set items
    • Practicability of data capture from routine clinical settings

Current members

  • ADOReg ‐ German Skin Cancer Registry | ADO ‐ German Skin Cancer Society | Germany
  • GEM Registry ‐ Spanish Multidisciplinary Melanoma Group Registry | GEM ‐ Spanish Multidisciplinary Melanoma Group | Spain
  • DMTR ‐ Dutch Melanoma Treatment Registry | The Netherlands
  • DMD ‐ Danish Melanoma Database | DAMMED ‐ Danish Oncology Melanoma Database | Denmark
  • CSEEREG ‐ Central South Eastern European Registry | CSEEMEG ‐ Central South Eastern European Melanoma Expert Group | Croatia, Serbia, Bosnia and Herzegovina, Montenegro
  • RoMelaReg ‐ Romanian Melanoma Registry | Romania
  • SwiMelaReg ‐ Swiss Melanoma Registry | Switzerland
  • MelaExpert ‐ MelaExpert | PSSO ‐ Polish Society of Surgical Oncology | Poland
  • HESMO ‐ Hellenic Society of Medical Oncology | Greece
  • CNMR ‐ Clinical National Melanoma Registry | Italy
  • BADO ‐ Bulgarian Association of Dermato-Oncology | Bulgaria
  • Ella Lemelbaum Institute for Immuno-Oncology and Melanoma | Israel

Committees

The scientific work of EUMelaReg is guided by a Steering Committee, comprising one representative of each partner, as well as theme-oriented Committees. In the course of the project, the formation of additional working groups will complement the organisational structure of EUMelaReg.

Steering Committee

Dirk Schadendorf
Germany
Lars Bastholt
Denmark
John Haanen
The Netherlands
Enrique Espinosa
Spain
Lidija Kandolf Sekulovic
Serbia, Croatia, Bosnia and Herzegovina
Piotr Rutkowski
Poland
Laura Mazilu
Romania
Helen Gogas
Greece
Paolo Ascierto
Italy
Johanna Mangana
Switzerland
Iva Gavrilova
Bulgaria
Nethanel Asher
Israel

Committees

Scientific and Data Access
Publication and Dissemination
Liaison
IT and Database

Please click on the respective committee to learn more about its main tasks.